Meny Stäng

I’m not a doctor, but… I AM a very well spoken, studied and observant hypermobile Ehlers-Danlos Syndrome patient with a lot of experience seeing doctors and reading about other people’s experiences of same too. And like many with hEDS, I also have MCAS and had mild POTS (a form of dysautonomia), which we find commonly co-morbid, and sometimes even more show-stopping at my worst. Läs mer>>